Today was our final day of chemo. This isn’t the end of this crazy, stressful, life changing ride..but it’s definitely a milestone that we have had on our calendars for a very long time.
Here are the last drops from the IV:
IMG_1512
►
The end of chemo brings a whole new set of challenges to tackle – but for now, I just feel an enormous sense of relief. We head for Hawaii on Friday and I feel like we’ve never needed a vacation any more than we need this one. For me, the last few months have been a crazy ball of stress, sleeping on hospital floors, trips to the ER, juggling schedules with work and (barely) keeping myself from going insane. And I definitely had the much, much easier road compare with our irrepressible patient.
Anyway, I think that I’ll be spending a lot of our upcoming trip in a state similar to the one Andrea spent today in:
Zzzzzz
Weirdly, our last chemo day is bittersweet. Dr. Smith and his team have really become a part of our family over the past few months, and it’s just a little sad to think that we’ll see them less often now. But I think we’re ready to move on to the next stage of our lives.
As we leave chemo behind, here are a few photos of our goodbyes….
Looking sharp on last chemo day. I wore pink on purpose..
I feel kind of lousy today. I think it was something I ate. It’s put me in a bad mood and makes me not want to do anything.
It also reminds me that Andrea has felt this way (and worse) for about 6 straight months.
I think many suffer through surgery and chemo, because they have no other choice. Much harder to endure all of the bad side effects – and keep a sense of humor, reassure your friends and family, blog, make time to talk to new breast cancer patients, stay active, upbeat and a positive force in the world..as Andrea has.
As many of you know, Andrea and I recently spent 8 straight days (Thursday last week – this past Friday) at the hospital. CPMC in Pacific Heights, to be exact. It was an unexpected setback, but we made it home in one piece and are getting back to normal. You can read all of the details on Andrea’s blog.
In truth, there was nothing fun about the experience. It was stressful, uncomfortable and scary. Something I never want to do again. Now that the experience is over, though….I wanted to share a few of my fond, funny memories of our stay. Because in the face of cancer, humor can be a really important ally. And if you can’t laugh at this…
Without further ado: here are my Top 10 Pro Tips for surviving and thriving through 8 days and nights at Club CPMC. Like Bear Grylls in the wilderness, I learned these hard earned survival lessons first hand in the field. Hopefully they’ll be of use to you, if you’re ever in the same situation.
Tip #1. Bring Lots of Personal Care Products. If you’re accustomed to staying at places like the W, or even the Holiday Inn, you’ll probably find that hospital soaps and shampoos are a couple (or 50) notches down from what you’re used to. An easy way around this is to bring your own supplies. Here’s a photo of our bathroom in the first room where we stayed. A closely related tip is that if your wife happens to have recentlyundergone chemo and lost all of her hair as a result – you don’t need to bring her favorite shampoos from home as a pick me up. In fact, I recommend you do not do this. I don’t really know what I was thinking…but on my first run back home, I grabbed a handful of Andrea’s shampoos and proudly brought them back to her….garnering me a “WTF” glare upon their unpacking. Ooops.
Tip #2. Stockpile the Ensure. You never know when you’re going to need it. The nurses (inexplicably) brought Andrea 4 Chocolate Ensures every day. One can only drink so many of these things, so we ended up stashing the leftovers in this drawer (along with some Thin Mints). For the zombie apocolypse? In case the hospital magically ran out of Ensure? I don’t know why. Moving on.
Tip #3. Find the Blanket Warmer. Staying warm during your stay is key. And this thing is genius. It’s basically a small oven where the nurses store blankets at a constant 128 degrees. Sort of like a wine fridge, but warm instead of cold…and for blankets instead of wine. You get the idea. When you’re feeling a little chill, you can just grab one, and it’s toasty warm. Like a Mrs. Fields cookie. Amazing. It’s a legitimate 5 star amenity that the Ritz should seriously consider adopting. Where do I get one of these for the house?
Tip #4. Smoke ‘Em if You Got ‘Em. The doctors wanted to test Andrea’s lungs – so they gave her this weird, mechanical peace pipe thing to induce her to produce more phlegm. More phlegm is basically the opposite of what most people want….so this contraption was not our friend. Why is this a tip? It’s not – I just liked this video and wanted to get it in here somehow. Check it out:
IMG_1067
►
Tip #5. Repeat After Me: “Service Animal”. If you’re hospitalized for an extended period, you’re going to really miss your pet. Fortunately, there’s always a way to smuggle them in for a quick visit. The key is to pass your dog, cat, bird, off as a “service animal”. What does this mean? I have no idea, and neither do most hospital security guards. Our awesome dog walker Valerie got Lucy up into our room for a quick visit using this ruse.
Tip #6. More Visitors = Awesome Presents. Trust me, you’re going to go a little stir crazy – so the more visitors you can get, the better. They lift your spirits and sometimes bring awesome gifts too. Like magazines:
and Richard Gere Rom Coms:
The best gift of all, though, came from Andrea’s mom, who sent me this vintage 1996 glamor shot of Andrea, via text message. Why?…Why not?!
Tip #7. Your Air Mattress is Your Friend. Hospitals are not typically known for their cozy guest accommodations. If you’re lucky, you’ll get an uncomfortable cot…or worse. I was able to find this old Aero Bed in our storage room on my first run home. I slept all 8 nights on it…and it wasn’t that bad. If you have one of these – it’s a life saver. (Hm. that actually sounded like a real, helpful tip….)
Tip #8. FREE CRANBERRY JUICE!!!!?!?! Pace Yourself. There’s a lot of free stuff at the hospital. Blankets, towels, painkillers, gauze pads, the aforementioned Ensure…Our first room was directly across the hall from the juice machine which dispensed a magical array of 4 juices (apple, orange, cranberry and lemonade) 24 hours a day, 7 days a week. For free. It was like something out of Willy Wonka’s chocolate factory. I sampled all the flavors on our first day and fell in love with the cranberry…before long I mastered the ratio of water/juice and was pounding juices down like Hurricanes at Mardi Gras. They were sooo good. By day 5, I never wanted to see, smell or taste cranberry juice again. Damn you free juice machine!
Tip #9. Don’t Forget the Cameras. If you’re going to be hospitalized for 8 days, you have to appreciate that there’s going to be a LOT of blogging, facebooking, texting, updating going on. Many of these updates will involve pictures, so your family and friends can see that you’re alright. An amateur may succumb to the (understandable) temptation to let their appearance go. The pro-patient, however, is always prepared to look her best. The next candid could be right around the corner. I snapped this photo of Andrea applying some makeup, I believe on Day 1…in the emergency room. Putting on lipstick, in between medical consultations. You have to love it.
Tip #10. Improvise. The accommodations are tiny and the longer your stay, the more stuff you’ll need. One of the challenges is finding an efficient way to charge all your devices, store dirty laundry, hide contraband (Ensure). For example – we constructed this handy coffee table (which we called the “credenza”), out of the box for my air mattress. Charging station on top…storage for laundry inside. And quite attractive too, don’t you think? You can find it in next summer’s IKEA catalog. It will also be made of cardboard, but be called by an unpronounceable Swedish name and require all day to assemble.
After many nights picking away at the cinder block walls with my rock hammer -- freedom is finally mine!
I'm thrilled to report that since the lung lavage and port removal, I've been afebrile (without fever) for 24 hours and my heart rate is no longer tacky.
Sum total of that info is they are letting me go HOME!!
We have a lot of crap to pack up after nine days here.
Chemo Tuesday again. It's weird how normal that's starting to sound to me. After several months of living in the trenches of battling cancer, I'm sure there are a lot of things that we both are completely used to that would have seemed very strange or scary not that long ago. Like me doing a little bit of lite work email from the chemo suite.
Anyway, while she’s doing her chemo treatments, I’m usually sitting right next to her. Dr. Smith’s clinic is a surprisingly positive environment. It’s one of the reasons we picked him as our oncologist. Check out the picture below – a typical day in the infusion suite. Puppy visitors and lots of positive, supportive co-patients…sharing tips, stories and perspectives about their fight with cancer.
It’s also a surprisingly productive place for me to work. Especially during Andrea’s pre-chemo massage, I have about an hour to kill by myself and I usually end up banging out a bunch of emails and P2 posts. At Automattic, we can work from anywhere – so why not the oncology office? It’s got great wifi – and doing a little work there really puts “work” in perspective. On one hand, it makes a lot of the things I’m working on feel a quite small or petty, when stacked up against the people around me who are literally fighting for their lives (this is especially true of litigation…). On the other hand, it makes me a little bit sad to think that otherwise smart people waste their time doing stupid things (like being patent trolls) when they could be doing something productive like trying to cure cancer. But that feeling is very fleeting. In the end, it makes me feel pretty good about what we do as a Company – Andrea’s blog has been a really great source of community, support, fun and inspiration through all of this crap. It’s a nice to think that what I do every day plays some small part in making that happen.
With everything that’s been going on with Andrea since October, golf had taken a back seat. I haven’t played since early October (pre-diagnosis) and frankly haven’t even had much time to think/daydream about being out on the course. Too many other things to worry about.
This weekend was an off chemo week, the weather was really nice and I had gotten a lot done during the work week. So I rolled the dice and headed out to HMB, hoping to get in a quiet 18. I really needed some peace – to play alone, and to walk. Without any real play or practice since October, I had no expectations. Just needed some therapy that only golf could provide.
It ended up being perfect. Great weather (but really windy). There was no one out there. I played alone and walked. It was so quiet and so nice to think about nothing but golf for 3 hours. I didn’t realize how much I missed it – even hitting a pretty bad shot felt great.
Weirdly, I ended up shooting the best score of my golf life. I had no idea where I stood until I tallied up my score on my walk back to the clubhouse. That’s probably why I played so well.